tag:blogger.com,1999:blog-4984975650770875916.post3381609527934710643..comments2018-09-08T15:36:09.778-05:00Comments on Uncommonly Disconnected: So Be It.Trishhttp://www.blogger.com/profile/00066168943529936014noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-4984975650770875916.post-84970578152669244572010-07-29T00:22:49.925-05:002010-07-29T00:22:49.925-05:00Hi. I was searching the web for EDS and Mito and f...Hi. I was searching the web for EDS and Mito and found your blog. Wow. I can so relate to your profile statement, esp. about finally realizing that everything you have experienced is not normal. I am years into trying to get a diagnosis and finally think I found the right doctor, an awesome neurologist. I will be having a muscle biopsy for mito and the genetic tests for EDS classical and vascular types as soon as it is all arranged (I hope that means soon!). I am a Christian, home schooling mom, which gets harder every day, since I end up spending so many days in bed with pain and no energy. Some of my children are starting to manifest symptoms also. I would like to email you direct, but couldn't find your email address on your blog. If you want you can email me at: jerri_d@comcast.net<br /><br />blessings,<br />jerriMom of thirteenhttps://www.blogger.com/profile/09537459011257295414noreply@blogger.com