In a nutshell...

   I'm new to this whole blogging stuff. I have my notes on Facebook, but that's about it. So, I decided it is time to join the army of people who post their journey. Mine may not be as dramatic as others, but it is still long none-the-less.  Every Saturday I will post a segment that goes into detail about one of the diagnosis that I have, until I finish them all ,then I will have to find some other way to entertain you! 

   So, here's the abbreviated version of it... 

The doctors at the Chiari Institute in New York suspect that I have Ehlers-Danlos Syndrome. EDS is a rare connective tissue disorder that involves near about every aspect of the body. Because of this I have hypermobile joints, including those that are the core support of my head, the cervical spine... I'll save the rest for another day...

Here is the "so far" list of my diagnoses:

Ehlers-Danlos Syndrome

Craniocervical Instability

Retroflexed Odontoid

Basilar Invagination

Pannus

Tethered Spinal Cord

Neurogenic Bladder

Possible Postural Orthostatic Tachycardia Syndrome

Chiari Malformation

Carpal Tunnel Syndrome

Cubital Tunnel Syndrome

TMJ

So, to put it all together: I am a BobbleHead with Loosy Goosy Joints and a pain in the.......... haha. 

I have so many appts scheduled for the next two weeks!

June 9th: Cardiologist at 9, Genetic Dr at 2

June 11th: Orthopedist at 2

June 12th: Primary Care dr (guess I better tell him what's going on...haha)

June 15th: Physical Medicine and Rehab dr.

And so many more things that need to be done... I still am not sure if I should find a new neurologist or confront the one I have... 

Well, enough chatter for now, tune in every Saturday for a layman's description of each diagnosis.                                                                                                                                                                                  TTFN!