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God Made Me Who I AM
- Trish
- I'm just a wife, mom and nurse who realized somewhere along the way that everything I perceived to be the norm is uncommonly disconnected. Without God I would be lost.
My Diagnosis & Symptoms
- Mitochondrial Disease
- Questionable Ehlers Danlos Syndrome Type 3
- Parathyroid tumor
- Proximal Muscle weakness
- Dysphasia
- Dysphagia
- Ataxia
- Hypermobility
- Muscle cramping/twitching
- Seizures
- Tachyarrythmias
- RO/BI/CCI/Pannus
- Raynaud's Phenomenon
My Peeps
History in the Making
Helpful Connects
Mito and EDS Support groups
Disclaimer!!!
Senior Prom, 1999
My husband and I forever ago, FYF.
Nikki and Daddy
Backstage at Decyfer Down
The M&M store in Time Square
Ohh Yeah!!
Sabrett
The real reason for going to NY =)
Reminiscing... Me in 1997
Well, at least I think it was 1997...
Mr Kitty enjoying the view.
Nikki
10yrs, Possible Mitochondrial Disease/EDS
Amy Noel
6 years old
Kimber, 8yrs
Atlanto-axial dislocation, Mitochondrial Disorder
Josh
4 yrs, Possible Mitochondrial Disease/EDS
Jeremiah 1:4-8
Helpful Doctors
- Dr. Bonnie Olney (primary care Dallas)
- Dr. Scheuerle-Dallas (genetics)
- Dr. Schiffman (neuro-metabolic specialist Dallas)
- Dr. Adair (PMR, Dallas)
- Dr. Francomano-Baltimore (genetics)
- Dr. Maher-Dallas (genetics)
- Dr. Insinga (TCI-neurosurgeon)
- Dr. Bolognese-Great Neck NY (neurosurgeon/chiari/CCI)
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