What is with the docs???

I thought with my daughters impending visits to Scottish Rite that I might benefit by asking what I can expect. So, I decided to ask one of our fellows... I don't understand why doctors have the prejudices about Ehlers-Danlos Syndrome that they have. When I said to him that I have EDS and that she is being worked up for it, the very first thing he said was "What, you have EDS? You must have the very mild form." Where did this judgement come from? I want to know exactly what is said in medical school that gives these doctors such a non-chalant attitude about EDS! No, my skin does not stretch 8 inches from my body, no I do not have major scoliosis or vascular EDS, but that does not mean that I am not plagued every hour of every day by the pain from EDS. I still have dislocations. I want to make them understand that just because I have a "milder" form does not make it any less painful! You don't tell a person with skin cancer "Well you just have skin cancer, it's not as bad as breast cancer." OR "You have a broken leg? It must be a really mild break." It's so frustrating! I just wanted to say "You know, I know you don't have EDS and I know you have a big ego, but just so you don't mistreat any of your future patients, here are the issues I deal with from my EDS, mild or not..."

Ok, I am not done venting, but that was exhausting, so good night...